Do you have an advocate?
If you’re making your way through the cancer journey, no matter what the prognosis, you need a helping hand.
You need an advocate.
I can not count the number of times, Leroy and I would meet with the doctors and come away with completely different “reads” on their message. We’d look at each other and say “Were you in the same room I was?” We’d go back over our notes and talk about how we interpreted their meaning and ultimately we’d come to a reasonable conclusion. Making informed decisions from these “group” chats helped so much. And when it was time for me, as the advocate, to make a decision on my own, I knew it really wasn’t on my own, because we’d covered so much cancer ground already.
There were times when he was in the hospital when advocating for his well being was so important. There were the little things like getting snacks and meals right, or bigger issues with doctors and nurses.
Advocating for a loved one is part of care giving. It’s not easy.
It’s like we’ve said so many times about becoming a care giver; We didn’t ask for it, but it’s probably the most important job we’ll ever do.