The gift of life…

She is the picture perfect example of a patient advocate.

She was basically told to go home, find a hospice group and die within the comfortable embrace of her family.  Her doctors told her they were out of options.  Her cancer was way ahead of her treatment, she could barely stretch out of her fetal position because it hurt so much and giving up the fight sounded reasonable at the time.

She had a sister who wasn’t going to let her quit, and she jumped on the www. clinicaltrials.gov  web page to search for some  answers.  She stumbled upon a clinical trial underway at the Bloomberg/Kimmel Immunotherapy Institute at Hopkins and reached out.  Though there were no promises, the doctors said “come on down” in so many words.

What happened is probably something many would classify as a miracle: A miracle of medicine and a miracle that you just can’t explain through science.  Her first treatment, on this trial, and her cancer started a hasty retreat to unknown territories.  Who knows where cancer goes when it bolts a body, but that’s what happened here.

She had such a major response to this clinical trial that before she knew her doctors were unable to find what was once a metastatic colon cancer nightmare.

Not everyone in her trial responded like she did and her doctors went to work to find out why.  It turns out she had a particular genetic mutation that worked in her favor and not the cancer that had been raging through her body.

She was given the gift of Life….again.

It’s been more than two years and she’s doing fine.  She returns to see her doctors and they put her through scans and blood work on a regular basis.  N-E-D

Beautiful letters…Awesome meaning….Can’t beat the gift of Life.

 

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Sondra March 16, 2017 at 1:25 pm

Good to hear such a positive, miraculous story.. Good to hear from you, Laurie..Hope you are well as we hopefully come into this spring of 2017…

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Judie March 16, 2017 at 10:00 am

How incredibly wonderfully!! Will stop crying (tears of joy) in a few…

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Kathie Scott March 15, 2017 at 9:36 pm

What an amazing story! I know she must wake up everyday with the sole purpose of enjoying her life. Nice to hear from you Laurie.

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Brady Merrill March 15, 2017 at 9:28 pm

Well howdy Laurie, was beginning to wonder.
I was texting with a younger woman the other day, she used ned, but meant to text need. I explained to her what NED is and that she wanted no part of the club.
Today I was speaking to a fellow about Tom Brokaw, which led me to Leroy and you, recommending the blogs as to what cancer is like from the personal views of people.
And now here you are, lol.
So I agree, NED, the letters combine to mean something special to those of us lucky enough to hear them.

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